CHANGE
YOUR STARS
Treacher Collins Syndrome
A Home for Resources
We are here to help change your stars!
Growing up my mother always told me to change my stars. She would write it at the bottom of letters she wrote to me when I was away at college. It meant that we have the opportunity to create any future we wanted, destiny isn't written in the stars. Once my son was born with Treacher Collins Syndrome we lived by those three words. With the lack of resources and the delay in diagnosis we felt that society was already creating his destiny for him. We took his future into our own hands and researched all the available resources that were available to him. We realized how hard it was to find all these resources and how beneficial it would be for the TCS community to have immediate access from the day they were born. That is how Change Your Stars came about. We can't wait to connect with you and grow together. -CJ Knighten

Our mission is to be an immediate one stop place for resources available for infants, children and adults with Treacher Collins Syndrome.

This website is a gathering of information and resources. We would love to connect with you and learn about the resources you have experienced. We hope to continuously update our resources as we learn about more.

This website is funded by the Knighten family and friends.
If you would like to donate to families and organizations that support Treacher Collins Syndrome please reach out and we are happy to help put you in touch with them directly.
Change Your Stars was founded in 2022 dedicated to spreading Treacher Collins Syndrome Awareness, connecting families and providing resources that help each individual thrive.
Change Your Stars Mission:
-Providing a list of resources within the U.S.
-To spread awareness within the healthcare systems
-Connect families with Treacher Collins Syndrome